An online discussion forum has been created to support patient and public involvement in Long COVID research. This is part of the CONVALESCENCE project PPIE (patient and public involvement and engagement) initiative. The forum aims to ensure that a broader cross-section of public/patient perspectives is included in discussions about defining Long COVID and in wider research.
Click here to read more, and this link to view the public forum space dedicated to discussing defining Long COVID. Register for an account if you would like to participate in the conversation.
The CSS Biobank team is also doing some work in this area. Using symptoms and other data from the ZOE COVID Study app, we are trying to understand if there are different types of long COVID and, if so, what clusters of symptoms define the types. We’ll share our results as soon as they are available.